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Disenfranchised grief
Friend Grief in New York - Part 1
Jun 04, 2014 by Victoria Noe
This is the first of two posts this week recapping my experiences in New York City last week. I was primarily there to be part of the Author Hub at Book Expo America (more about that on Friday). But today I want to tell about my first NYC book signing.Friend Grief and AIDS: Thirty Years of Burying Our Friendsgrew out of my experience in Chicago’s AIDS community in the late 80s/early 90s. I was a fundraiser, often the only straight person in the room. And though many people asked me why I involved in “that”, I felt a responsibility to do what I could.An unexpected but remarkable result of writing this book has been meeting men in ACT UP (AIDS...
This Year – and Next - in Friend Grief
Dec 27, 2013 by Victoria Noe
Those of you who have been following my blog for a while know that this has been quite a year. I think we all have the tendency to look back in late December, and cringe at the thought of all we’d planned to do but didn’t. I started to do that not long ago, but had to stop myself. I was looking at only one part of my goals for this year, and in that category I definitely came up short: I self-published three books instead of six. Yeah, I know, I was a bit too optimistic. But what surprised me more than anything was what I accomplished that was not on my list. And I’ll tell you right now,...
Friends and/or Loved Ones
Dec 18, 2013 by Victoria Noe
If you’re like me, you’ve been through your share of wakes and funerals. Although every culture has their own traditions, one is universal: the role of a friend. Family members are typically at the center of the grief universe. They’re the ones notifying the world, making arrangements, dealing with logistics. But I think we can all agree on what most people expect friends of the deceased to do: support the family. Just support the family.I saw a lot of exceptions to this when I worked in the AIDS community. People, whose families had rejected and abandoned them, even as they were dying, relied on their friends for everything. But generally speaking, if a friend of yours dies, you’re relegated...
Coming Attractions on Friend Grief
Jun 04, 2012 by Victoria Noe
I’m in New York this week, for Book Expo America and to meet some writing deadlines that have been hanging over my head. I thought this is a good time to let you know what’s coming up in the next few months here on Friend Grief:1. Guests. I’m quite excited that you’ll be seeing a guest blogger once a month. Men and women, their ages will vary, as will their perspectives. One was a caregiver to her friend, another is a grief professional. Yet another will offer a new take on the AIDS epidemic. All are excellent writers. What they share is the experience of grieving the death of a friend.2. Book reviews. More than one person has pronounced my...
Disenfranchised (Friend) Grief
Feb 23, 2012 by Victoria Noe
Last April, I wrote about the concept of "disenfranchised grief". If you've experienced a lack of empathy - perhaps even a callous disregard for your grief - you already know what I'm talking about. On this blog and in my book, I try to shine a light on this kind of grief:I didn’t know when I decided to write my book that there was such a thing as “disenfranchised grief”, coined by Dr. Kenneth Doka of the College of New Rochelle, in 1989. In the 2002 revision of his Disenfranchised Grief: Recognizing Hidden Sorrow, Dr. Doka observes how the grief a friend experiences can be dismissed:“Often there is no recognized role in which mourners can assert the right to mourn and thus receive such...
"Forming Community" - AIDS@30
Nov 30, 2011 by Victoria Noe
Steve & I at the Drake "Forming Community" first appeared in April in Windy City Times. I was honored that publisher Tracy Baim asked me to be part of her series on the history of the epidemic. For tomorrow, World AIDS Day, here it is:The first time I remember being conscious of the effects of AIDS was March, 1983. My girlfriend was in the hospital, after a difficult labor and delivery that called for a transfusion. She worked in the lab at that hospital and knew the blood supply wasn’t safe. When I visited her there, her sheets had more color. But she still refused the transfusion.Sex in the 80’s – gay or straight – was a challenge. I was...
World AIDS Day 2011 - 30 Years of AIDS
Nov 28, 2011 by Victoria Noe
“Disenfranchised grief” is defined as grief that is not socially accepted or acknowledged. I learned a lot about it in the AIDS community.Thursday, December 1, is World AIDS Day, this year marking the 30th anniversary of the pandemic.I worked in the AIDS community in Chicago in the late 80’s/early 90’s, after volunteering for a while to raise money for much needed services.If you had told me in 1981 that 30 years later we’d have no cure, I wouldn’t have believed you. Scientists always seemed to be “closing in on” a cure.If you had told me in 1981 that in addition to having friends who died within weeks of their diagnosis, that I would also have friends who have been HIV+...
Things I’ve Learned Writing a Book about Friend Grief
Jul 13, 2011 by Victoria Noe
It’s been five years since I promised my friend, Delle, I’d write a book about dealing with the death of a friend; almost two years since its form finally became clear to me. I’d already spent over two years mulling it over, writing in fits and starts (mostly fits) before hitting the wall. I’d given up, but one day, it was just there like magic; or karma.I began by researching the whole phenomenon of “disenfranchised grief”: grief that is not acknowledged or respected. Grieving the death of a friend certainly fit the definition. I already knew from personal experience that while everyone at some point will experience the death of a friend, most people are not very sympathetic of others’...
D is for “Disenfranchised”
Apr 04, 2011 by Victoria Noe
I’m on an A to Z blog challenge, and today is the 4th day of the challenge. That explains the pithy title. ;)I didn’t know when I decided to write my book that there was such a thing as “disenfranchised grief”, coined by Dr. Kenneth Doka of the College of New Rochelle, in 1989. In the 2002 revision of his Disenfranchised Grief: Recognizing Hidden Sorrow, Dr. Doka observes how the grief a friend experiences can be dismissed:“Often there is no recognized role in which mourners can assert the right to mourn and thus receive such support. Grief may have to remain private. Though they may have experienced an intense loss, they may not be given time off from work, have...
Types of Grievers
Feb 21, 2011 by Victoria Noe
What kind of griever are you?One of the hardest things for some people to understand is that everyone grieves in a different way. Throwing yourself back into your “normal” routine may be perfect for some people, but the worst possible thing for others. I’m not even talking about gender. The differences I’m talking about today are personality differences. Of course, gender, ethnicity, even age may have an influence on these behaviors. But that’s what they are: responses to a situation. Personality and behavioral assessments are used in business every day: Enneagram, Meyers-Briggs, DISC. In Dr. Kenneth Doka’s book, Disenfranchised Grief, he offers a description of different types of grievers. You may see yourself and others in these descriptions:1. Intuitive: Some...
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