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Are Friends Considered "Loved Ones"?

May 10, 2011 by Victoria Noe
I got a request today for a referral to a grief support group for friends.Now, I’ve been doing some occasional research on this for about six months now. My completely unscientific results so far have shown that very, very few grief support groups specifically (that is, in their literature) welcome friends.Why is that?I asked the Executive Director of a well-known agency in Chicago, and she insisted that their general grief support groups welcome friends. When I reminded her that the group description mentions loved ones, she insisted that that included friends.“I’ve never thought ‘loved ones’ meant ‘friends’,” I told her. She was surprised. She assumed that – because she believed it – that everyone accepted that friends are in fact...

The Myth of Closure - Part 3

The Myth of Closure - Part 3
May 06, 2011 by Victoria Noe
It's been quite a week, hasn't it?I’ve been talking to a lot of people this week about closure, as it applies – or doesn’t – to the death of Osama bin Laden.The word has been bandied about in newspapers, blogs, Facebook, Twitter and every news program on TV. My “research” has gleaned the following observations:1.      Closure does not end grief.2.      Justice does not ultimately equal closure.3.      Those who speak most emphatically about closure tend to be observers to the situation, rather than directly affected.4.      Those who are most directly affected by 9/11 don’t all see bin Laden’s death as closure.5.      Believing there is closure makes people feel better, because they think they will no longer have to witness grief.6.      Closure...

The Myth of Closure - Part 2

The Myth of Closure - Part 2
May 05, 2011 by Victoria Noe
Firefighter's PewSt. Paul's Chapel near Ground Zero“I hope it brings some comfort to the families. No closure. That word should be stricken from the English language.” - Lee Ielpi, whose son, Jonathan, a firefighter from Queens, died on 9/11 (quoted in the May 3, 2011 New York Times).Much is made of the concept of closure. We’ve been told that certain things – an anniversary, a verdict, a discovery – can somehow end grief. Closure is considered the act of putting a period at the end of the sentence of grief.  Except there’s no such thing. The death of Osama bin Laden has been heralded as closure for those who lost family and friends on 9/11, the end of the grieving....

The Myth of Closure

The Myth of Closure
May 02, 2011 by Victoria Noe
“Closure: the sense of finality and coming to terms with an experience, felt or experienced over time.” – Encarta Dictionary“Closure” is a word frequently invoked in grief-related literature. Events are said to bring “closure” to people who grieve: discovery of remains, burial, 1st anniversaries, etc.But the news of the death of Osama bin Laden may only be initially considered closure.Certainly, the death of the most wanted terrorist in the world is a cause for celebration, even not knowing how other terrorist organizations will respond.But for those who lost family or friends on 9/11, there is no closure.Osama bin Laden is dead, but so are their loved ones.Don’t assume everyone is happy and “all right” now. Don’t assume the grieving is...

“Forming Community” – AIDS@30

“Forming Community” – AIDS@30
Apr 28, 2011 by Victoria Noe
The current issue of Chicago’s gay weekly, Windy City Times, includes a guest column I wrote, “Forming Community”.As part of their 9-month “AIDS@30” series, I reflected on my time as a fundraiser in the AIDS community, and what it was like to be a straight woman in a mostly gay environment.You’ll want to bookmark this website, http://www.windycitymediagroup.com/aids.php to read the entire series. If you are of a certain age, you’ll remember a lot. If not, well, you might learn a valuable history lesson or two.                                                                                            

AIDS@30

AIDS@30
Apr 25, 2011 by Victoria Noe
This month, Windy City Times started a 9-month series on AIDS@30, in conjunction with the AIDS Foundation of Chicago.The series began with a timeline that will jog your memory if you’re of a certain age, and surprise you if you aren’t. I found myself reading it, thinking to myself, “I forgot about that” or “I remember him.”You’ll find statistics, photos and remembrances. It has already brought back a lot of memories for me.Publisher Tracy Baim was nice enough to ask me to contribute to the series, and I will post when that guest column appears.Visit the Windy City Times website, www.windycitymediagroup.com, and click on “AIDS@30”.The AIDS epidemic is 30 years old, and sadly, not over yet. Through this series, you’ll...

What Kind of Griever Are You? - Part 2

Apr 20, 2011 by Victoria Noe
Everyone grieves differently.Often, people assume that someone who cries or talks about the person who has died is not handling their grief well. They are encouraged to stop crying, to not dwell on the past. But for that person, that’s how they express their grief.  Others are what may be defined as “instrumental” grievers. Rather than express their grief by crying, they are more likely to intellectualize their grief. They want to understand their grief, but they don’t want to talk about it. They want to control their grief, so it doesn’t overwhelm them, or surprise them, or distract them.They may also want to ‘do’ things. They may show up with food for the family, or run errands for them....

Online Resources: Dying Matters

Online Resources: Dying Matters
Apr 18, 2011 by Victoria Noe
Despite all the hysteria about ‘death panels’, there is a critical need for each and every one of us to thoughtfully consider end-of-life plans. It’s an uncomfortable subject for most people. But avoiding the subjects of where we want to spend our final days and how, what kind of services we want held, and how we want to be remembered will not make them go away.Dying Matters is a UK-based nonprofit coalition. This is from their website:“In 2009 the National Council for Palliative Care (NCPC) set up the Dying Matters Coalition to promote public awareness of dying, death and bereavement. Our members include organisations from across the NHS, voluntary and independent  health and care sectors (including hospices, care homes, charities supporting old people,...

The Melody of Friendship

The Melody of Friendship
Apr 15, 2011 by Victoria Noe
When I read Viki’s post, “Do You Need Any Help?”, I immediately thought of my best friend, Judy, who died of breast cancer in 1993 after a five year battle. Viki invited me to do a guest post on what it is like to lose a dear friend. Let me tell you about Judy…Where do I begin to describe a friendship of twenty years; a friendship that endured life’s many tough lessons and trials? The diagnosis of cancer, the rigors of single parenting, the challenges of living in a fast-paced world were all intertwined throughout this friendship. We clung to each other through the maze of self-discoveries, growth, career changes, family milestones, achievements and failures.I didn’t realize I would be...

What Kind of Griever Are You? – Part 1

Apr 14, 2011 by Victoria Noe
There is no one way to grieve.There is no right way to grieve.Everyone experiences grief in different ways.Some people let themselves grieve in a physical way. Some clinicians refer to them as “intuitive” grievers. Another word for this type of griever could be “emotional”. Their grief is on display, not held back.Intuitive grievers express feelings that are intense. Crying is probably the most common expression, and it mirrors how they are feeling. Typically, in our culture, expressing grief in this way is considered a female response, rather than male. That also can imply weakness.Crying is not the only physical manifestation of grief for an emotional griever. They may experience prolonged periods of confusion, inability to concentrate, disorganization, and disorientation. Their...

9/11 - When the Therapists Needed Therapists

9/11 - When the Therapists Needed Therapists
Apr 11, 2011 by Victoria Noe
 "Firefighter Pew" at St. Paul's Chapel, near Ground Zero Karen M. Seeley’s book, Therapy after Terror:  9/11, Psychotherapists, and Mental Health,(Cambridge, UK:  Cambridge University Press, 2008) explores a relatively invisible group of September 11 survivors: therapists.New York City was overwhelmed by the need for mental health professionals to help survivors and witnesses cope with the horror of the attacks. To their credit, many came forward in the city as well as from other parts of the country.  But helping those who grieve after a terror attack presented challenges never before considered.Most of the therapists were “outsiders”. Firefighters, already a tight-knit, closed society, were unwilling to talk to anyone outside of the department (assuming they talked at all). Unless you...

F is for Friends We Grieve

F is for Friends We Grieve
Apr 06, 2011 by Victoria Noe
You would probably be surprised by the number of friends you’ve had in your life: friends from your neighborhood, your school, your church, your first job, your sports team, your theatre group. But life being what it is, you lose touch, maybe geographically separated, maybe just slipping away because your interests changed.Then you go to a reunion, or a party. You skim the alumni newsletter. And you discover they’ve died.Your first reaction may be shock, but your second reaction is likely to be a memory. It might be a memory that now seemed eerie. It might also be a silly or funny memory.My husband and I sat in Holy Name Cathedral in Chicago, three days after 9/11, for an inter-faith...

D is for “Disenfranchised”

D is for “Disenfranchised”
Apr 04, 2011 by Victoria Noe
I’m on an A to Z blog challenge, and today is the 4th day of the challenge. That explains the pithy title. ;)I didn’t know when I decided to write my book that there was such a thing as “disenfranchised grief”, coined by Dr. Kenneth Doka of the College of New Rochelle, in 1989. In the 2002 revision of his Disenfranchised Grief: Recognizing Hidden Sorrow, Dr. Doka observes how the grief a friend experiences can be dismissed:“Often there is no recognized role in which mourners can assert the right to mourn and thus receive such support.  Grief may have to remain private.  Though they may have experienced an intense loss, they may not be given time off from work, have...

"Longtime Companion"

"Longtime Companion"
Apr 01, 2011 by Victoria Noe
For many people – certainly anyone under 40 – it feels like AIDS has been around forever. With the spread of the disease around the world, the media focus has actually dimmed. Rarely do you hear of celebrities dying of AIDS. With the development of the so-called AIDS “cocktail” of drugs, those infected can live much longer, healthier lives than anyone could’ve predicted 30 years ago.On July 3, 1981, a story appeared in the New York Times on Kaposi’s Sarcoma, a rare cancer affecting gay men. It is on that day that the film Longtime Companion opens.The first feature-length film addressing the AIDS epidemic, Longtime Companion follows a group of friends through the 80’s. We see the denial, the ignorance,...

"Do You Need Any Help?"

"Do You Need Any Help?"
Mar 30, 2011 by Victoria Noe
When someone dies, most people have good intentions. They want to mourn, they want to remember. And they want to help those who are grieving themselves.Often, when you grieve the death of a friend, the focus is on their family. They are the “primary” mourners. They are the ones who get the most sympathy. And families do deserve sympathy and support.The standard question is, “do you need any help?” Now that’s not always the best thing to ask. For one, it puts the burden on the griever to identify and express that need. They may not be thinking clearly enough to do that. It can also come off as insincere, as if the person asking is hoping the answer is no.Even...

Back to Ground Zero

Mar 28, 2011 by Victoria Noe
I’ve been to Ground Zero three times.The first time was in 2005, a few weeks after my father died. I didn’t like being there, probably because I was already mourning more than I believed possible. We went down and looked through the chain-link fence. Banners listing the names of the victims covered large sections of the fence. When you looked down, you saw a massive hole in the ground, a few trucks and not much else. The enormity of it was so much more dramatic than seeing it on TV. My classmate’s name was right there, in alphabetical order. I felt like it was a pilgrimage, of sorts.I went back in October, 2009, when I first started on my book....

When A Celebrity Dies

When A Celebrity Dies
Mar 26, 2011 by Victoria Noe
I recently posted on the phenomenon of grieving when a celebrity dies. We grieve because we have a connection to them, just as we do with our real friends. “I felt like I knew them” is a familiar explanation.Aurora Winter’s article, Elizabeth Taylor: 5 Tips for Overcoming Grief When a Celebrity Dies, looks at this from the perspective of actress and AIDS activist Elizabeth Taylor’s recent death. She has some thought-provoking tips for using a celebrity’s death as a catalyst for your own life. Read her article at:  http://finance.yahoo.com/news/Elizabeth-Taylor-5-Tips-for-prnews-1227967326.html?x=0&.v=1Monday – Back at Ground ZeroWednesday – “Do You Need Any Help?”Friday – Longtime Companion

Memorializing Your Friends – StoryCorps

Memorializing Your Friends – StoryCorps
Mar 23, 2011 by Victoria Noe
One of the disadvantages some people feel when a friend dies is the inability to pay tribute to their friend.  You might give a gift in their memory to their favorite charity or cause.But we want the world to know how important and special this friend was to us; why the world is a little sadder without them.So there are blogs – not unlike this one – and Facebook tribute pages.  But another wonderful way to honor your friends is through StoryCorps.StoryCorps is an organization dedicated “to providing Americans of all backgrounds and beliefs with the opportunity to record, share, and preserve the stories of our lives.”I first learned about StoryCorps in conjunction with the September 11 Initiative, preserving stories...

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Mar 22, 2011 by Victoria Noe
The AIDS Memorial in Hudson River Park, New York City, perfectly expresses the themes of my books.

The Gift of Saying Goodbye

Mar 21, 2011 by Victoria Noe
My husband and I recently visited a friend who’s dying. His partner has been keeping a group of us up to date on their situation, and on a Saturday afternoon, we were able to visit them. We weren’t alone; two other friends had flown into Chicago from Dallas and Seattle.Our friend looks awful (so does his partner), but for a few minutes, the old energy and sense of humor were back. We all had a lovely visit, though brief.Yes, it was uncomfortable, and yes, it was undeniably sad.But what a gift it was, too.The gift was not just that we were able to see him, probably for the last time.The gift was that we were allowed to see him.Too often,...