Victoria Noe

Award-winning Author, Speaker, Activist

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Friend Grief

World AIDS Day 2013

World AIDS Day 2013
Dec 01, 2013 by Victoria Noe
In his November 4 review of Time Line Theatre’s revival of The Normal Heart, the Chicago Tribune’s Chris Jones attempts to put the play in historical context: “AIDS is no longer a death sentence.” If only.While it is true that those newly diagnosed are not given a prognosis of, say, thirty days (like Ron Woodroof in Dallas Buyers Club), in the fourth decade of the epidemic, there is still no cure and no vaccine. According to the Joint United Nations Programme on HIV/AIDS (UNAIDS), new infections are on the rise in Eastern Europe and Central Asia: 13% since 2006. In the past 12 years, new HIV infections have doubled in North African and the Middle East. Worldwide, 1.6 million people...

How to Help A Friend Who’s Dying

How to Help A Friend Who’s Dying
Nov 05, 2013 by Victoria Noe
Since I saw Dallas Buyers Club (my review here) I’ve been doing a lot of thinking. Although the main character, Ron Woodroof, is initially focused only on his own survival, eventually the people he helps – especially Rayon – become friends. He is literally helping them stay alive. And that got me thinking: what would I do?Sometimes what we are called upon to do, what we are able to do, seems insignificant: running errands, chauffeuring to doctor’s appointments, cooking meals. All serve a dual purpose: taking the burden of the mundane off the shoulders of someone who needs to focus all their attention and energy on fighting their disease, and also to provide a tangible example of friendship.Not everyone’s good...

"Dallas Buyers Club"

"Dallas Buyers Club"
Oct 29, 2013 by Victoria Noe
Matthew McConaughey (Focus Features)“You’ve got 30 days.”To live.We’ve just met Ron Woodroof, an electrician and rodeo cowboy, who seems to spend an equal amount of time getting drunk and having sex. Suddenly ill, he finds himself in the hospital, being told what was unthinkable for a straight man in 1985: he was HIV positive. “Get your affairs in order,” the doctor tells him. He doesn’t. Instead, his crash course in research about AIDS makes him the most unlikely – and initially, unlikeable - cinematic hero you will even encounter.Based on a true story, Dallas Buyers Club recounts with great authenticity a moment in history. Rock Hudson had just died. Tens of thousands of non-celebrities had died of AIDS. ACT UP...

Letting Your Friend Die

Letting Your Friend Die
Oct 25, 2013 by Victoria Noe
benawyn.wordpress.comI think most people agree that everyone has the right to make decisions about their health. No one wants to be forced to have medical procedures they don’t want. And who wouldn’t want to decide their own end-of-life care? But theory can be very different from practice, especially when it comes to our friends.I remember when my friend, Delle Chatman, announced she was discontinuing treatment for yet another recurrence of ovarian cancer. Before that, she’d led us to expect miracles each time it came back. But after a month of treatments, she emailed her friends to say her body couldn’t take anymore. Everyone agreed in theory that the decision was her right. But that didn’t mean we weren’t angry....

Avoid Friend Guilt

Avoid Friend Guilt
Oct 08, 2013 by Victoria Noe
When someone dies, those left behind often feel some measure of guilt. Sometimes the guilt is directly related to the death: why didn’t I take the car keys away from him? Sometimes the guilt is a little narcissistic, the assumption being that we had the power to keep that friend alive…if only we’d done X, Y or Z. And sometimes the guilt is about something very personal, very small in the great scheme of things: sometimes we feel guilty for what we didn’t say.I don’t believe I ever told any of my friends I loved them until after 9/11. The shock of that day – and later finding out that I knew someone who died in the towers – prompted...

Helping Friends Pick Funeral Music

Helping Friends Pick Funeral Music
Sep 26, 2013 by Victoria Noe
There seem to be two types of funerals. One is the kind that makes us cringe, may even make us angry. It’s where the person leading the service never met the person who died. It’s obvious – they ramble on in general, pious terms. They mispronounce the deceased’s name. Times like those I want to walk up to the front, say “shut up and sit down” and invite friends and family to do a better job.Then there are those we never forget. I’ve been to a few, where the eulogies made us laugh, made us cry, and even made us give standing ovations. And the music…well, the music makes all the difference.I remember walking into my friend Delle’s apartment...

National Suicide Prevention Month

National Suicide Prevention Month
Sep 17, 2013 by Victoria Noe
September is National Suicide Prevention Month, and if it seems like suicide is in the news more lately, there’s a reason for it. The numbers (not just awareness) are up and three groups of people seem most at risk: teenagers, military and Baby Boomers.We’ve known that teenagers are at risk for suicide for a long time. Raging hormones, pressure from parents and school, drugs and alcohol make a deadly combination. But a large number of suicides of teenagers – and even pre-teens – can be traced to bullying. Kids whose only crime is being different or being sensitive or smart or small for their age are hounded by bullies: on the school bus, on the internet, even getting text messages...

The Next Friend Grief Book

The Next Friend Grief Book
Sep 03, 2013 by Victoria Noe
“Families only.”Those who were killed on September 11, 2001 left behind more than family members. They left thousands of friends who are often forgotten and ignored: co-workers, first responders, neighbors and survivors who struggle to find a way to grieve the friends killed when the World Trade Center towers fell. In Friend Grief and 9/11: The Forgotten Mourners you’ll learn how they adjust to life without their friends and find ways to honor those they lost on a clear, blue Tuesday. It’s been two years since I wrote a post hereabout what became the basis of this book: the hierarchy of grief in the 9/11 community. But let’s be honest: does the world need another book about 9/11? As it turns...

What’s New on Friend Grief?

What’s New on Friend Grief?
Aug 27, 2013 by Victoria Noe
I always considered the first day of school to be more like the start of a new year than January 1st: lots of new beginnings and excitement (not to mention shopping for new clothes and supplies). There is certainly a lot of excitement here (though not much shopping)! So, I thought I’d bring you up to date on what’s coming up with Friend Grief in the next month:1.      I’ll be a guest on Madeline Sharples’ websitetomorrow, August 28, talking about how my writing made me an activist - again.2.      Through Labor Day, I’ll donate 25% of the price of the paperback and e-book versions of the second book in the Friend Griefseries, Friend Grief and AIDS: Thirty Years of Burying Our...

Grief Trolls

Grief Trolls
Aug 16, 2013 by Victoria Noe
darkpsychology.coThe internet can be a source of great knowledge. It can bring people together. But there is a dark side, too. Many people have found Facebook and other social media sites to be helpful as they grieve. Information about a person’s death is easily disseminated, along with funeral arrangements. Its efficiency is a blessing for the families, because it eliminates the need to make dozens of emotional phone calls. Tribute pages are set up by family and friends, as a way for people to express their grief and share memories of the person who died. Not everyone can attend a funeral or memorial service, and this gives them the opportunity to give comfort to those left behind.There is a...

What Do You Miss The Most?

What Do You Miss The Most?
Aug 12, 2013 by Victoria Noe
Delle's scarfOn Saturday I went to Halsted Street Days, a street festival in the heart of Chicago’s gay community. I’d been there many times over the years, and have watched it grow more mainstream: Walmart and Marriott had booths.But as I walked through the crowds, past the bars and my favorite Chinese restaurant, I began to think of friends long-gone. There were many, not all of them from the time in my life when I was involved in the AIDS community. And when I thought of them, there always seemed to be one thing that immediately came to mind. I miss Mary Ellen’s laugh: always loud and unrestrained, occasionally embarrassing but always sincere.I miss Steve’s work ethic and child-like...

What Could Be Worse Than A Friend’s Death?

What Could Be Worse Than A Friend’s Death?
Jul 25, 2013 by Victoria Noe
Surviving. Of course we survive. We wouldn’t be here to grieve our friends if we weren’t alive. Sometimes the depth of that grief takes us by surprise, which is one of the reasons why I started this blog and my books.But when I started writing about grieving the death of a friend, I didn’t expect to find that survivor guilt plays such a huge role in the lives of many people.While researching the second book in my series, Friend Grief and AIDS: Thirty Years of Burying Our Friends, I learned that one of the biggest issues for long-time HIV+ men is survivor guilt. Like me, they lost a lot of friends: dozens, even hundreds. But because of luck or...

Evanston's First Death Cafe

Evanston's First Death Cafe
Jul 02, 2013 by Victoria Noe
Last fall, I co-hosted the first Death Café in Chicago.              Death…what??? A Death Café is an informal, non-therapeutic opportunity for people to come together and discuss topics surrounding death and grief. The objective of this movement is "To increase awareness of death with a view to helping people make the most of their (finite) lives".Begun in Switzerland, it spread to the UK and the US. Since 2011, over 1,000 people of all ages have attended a Death Café. Our next Death Café will be held Monday, July 15 at Curt’s Café in Evanston, Illinois. It’s open to anyone with questions about death and grief, because no one has all the answers.A Death Café offers you the opportunity to...

Saving Grief Until After Wimbledon

Saving Grief Until After Wimbledon
Jun 28, 2013 by Victoria Noe
stream.goodwin.drexel.eduI’m not a huge tennis fan; in fact, I’m still learning the game. But I became a fan of Novak Djokovic a couple years ago. Part of it was because he’s from Belgrade; my mother’s family is from Zemun, about 10 miles away. Part of it was his style of play and manner. So many athletes are loud, rude, and arrogant. But I enjoyed his funny Facebook posts and learning about his involvement in charitable work in his hometown.During the French Open, I heard about the death of his childhood coach, Jelena Gencic. I immediately remembered a 60 Minutes interview I’d watched last year, where he was shown returning to Belgrade to visit with her. Their love and respect...

ACT UP/NY’s Non-Reunion Reunion

ACT UP/NY’s Non-Reunion Reunion
Jun 18, 2013 by Victoria Noe
Few things get your attention like hearing the news a friend has died. For many of the original members of ACT UP (AIDS Coalition to Unleash Power), the death of Spencer Cox was just such a wake-up call.Keep in mind that these were men and women who lost dozens, if not hundreds, of friends to AIDS. They were on the front lines of the epidemic: educating, advocating, demonstrating, demanding. Some of them carry the AIDS virus themselves, saved by the ‘cocktail’ developed in 1996.So you could forgive them if the numbness of experiencing so many losses would affect their ability to grieve. Similar to the military, you have to put your grief aside because the deaths just keep on coming....

Friend Grief Has Come A Long Way

Friend Grief Has Come A Long Way
Jun 14, 2013 by Victoria Noe
In January, 2011, I was preparing to go to my first writer’s conference, where I would be pitching agents for the first time. Part of my research was something that I used to impress upon people – not just agents – the need for a discussion about grieving a friend. So I Googled “grieving the death of a friend”. I expected to find some references to a mostly academic book on the subject. But as I scrolled through the top 100 listings, I was startled:More than half were for people who hadn’t lost a friend, but wanted to help a friend who was grieving.            There were more listings for people grieving the death of a pet than a human...

Talking About Friend Grief at BEA

Talking About Friend Grief at BEA
Jun 07, 2013 by Victoria Noe
publishingtrendsetter.comI recently attended Book Expo America, the largest publishing trade event in the country. It’s exhausting: roaming dozens of aisles filled with hundreds of publishers. They’re there to promote new books, authors, services. It’s crowded and noisy and severely over-caffeinated (despite the presence of only one Starbucks in the whole Jacob Javits Center. And there are lots of free books and other swag to take home. You need comfortable shoes and a rolling suitcase to survive.I was there mainly to get new and upcoming books to review on BroadwayWorld.com. But I was also there to talk to some of my production partners (Kobo, Amazon, etc.) and check out any relevant new titles for my research.When people asked what I write...

Broadway Cares/Equity Fights AIDS

Broadway Cares/Equity Fights AIDS
Jun 04, 2013 by Victoria Noe
I’ve been fortunate to meet a few of my heroes recently, founders of ACT UP. While there were times when I disagreed with their tactics, I never questioned their passion or results.They’ve been there since the beginning, as caregivers and advocates. They’ve been through the wars and now face something just as dangerous as AIDS itself: complacency.AIDS is simply not on the radar for a lot of people anymore. It’s no big deal. So what if you get infected? There are drugs to take. You’ll be fine. If only it were that simple.When the epidemic first began, the arts community suffered a disproportionate number of losses. That was certainly because many gay men were involved in theatre, design, music, dance...

Death Ends a Life, Not a Friendship

Death Ends a Life, Not a Friendship
May 28, 2013 by Victoria Noe
Delle's was grey & mine was blackIt’s no secret to anyone who reads this blog that I have “heard” from my friend, Delle, many times since she died in 2006.The time that has passed since she died is actually longer than the time we knew each other. But I still find myself talking about her in the present tense.I’m not the only person who feels that way. It’s going on seven years since she died, and I still hear her friends say “I think about her every day.” She had that kind of effect on people.Maybe you have a friend who changed your life, and maybe they’re dead. Does that mean your friendship is over? I’ve learned in many ways...

Watching Your Best Friend Die

Watching Your Best Friend Die
May 07, 2013 by Victoria Noe

npr.org I wasn’t going to write about Hadiya Pendleton. I live in Chicago and frankly, there are too damn many Hadiya Pendletons: young people murdered for no other reason than being in the wrong place at the wrong time.   Sunday’s Chicago Tribune carried a front page article about Hadiya’s closest girlfriends. They’re typical kids, teenagers, whose lives will never be the same: both for their close friendships with Hadiya and the horrible death they witnessed.   The shots detonate like firecrackers – boom boom boom boom boom – and the friends, a dozen of them altogether, run.   The girl named Danetria does not run well. She is out of breath, struggling to keep up, when, ahead of her, she sees one of her friends fall,...