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Friend Grief and Men (ACT UP Edition)
Dec 15, 2015 by Victoria Noe
Jim Eigo receiving his award from Stephen Spinella
One of the men you’ll meet in the final book of my series – Friend Grief and Men: Defying Stereotypes – is Jim Eigo.
When I walked into my first ACT UP/NY meeting almost three years ago, Jim was the guy who waved me over to an empty chair in the circle. That kindness morphed into a friendship I treasure.
He has a long resume, which I’m sure was recounted when he was honored at Treatment Action Group’s (TAG) Research in Action Awards on Sunday night in New York. Playwright, editor, writer, activist: words that cannot convey the depth of his talent and commitment to fighting the epidemic that is now...
One of the men you’ll meet in the final book of my series – Friend Grief and Men: Defying Stereotypes – is Jim Eigo.
When I walked into my first ACT UP/NY meeting almost three years ago, Jim was the guy who waved me over to an empty chair in the circle. That kindness morphed into a friendship I treasure.
He has a long resume, which I’m sure was recounted when he was honored at Treatment Action Group’s (TAG) Research in Action Awards on Sunday night in New York. Playwright, editor, writer, activist: words that cannot convey the depth of his talent and commitment to fighting the epidemic that is now...
CrowdFunding Isn't Only About Money
Dec 08, 2015 by Victoria Noe
leardon.com
My own crowdfunding campaign began this time last week on RocketHub, to support research expenses for my book Fag Hags, Divas and Moms: The Legacy of Straight Women in the AIDS Community. So I thought I’d share what I’ve learned so far:
Running a crowdfunding campaign is hard work. I knew, thanks to the detailed training materials from RocketHub and New York Foundation for the Arts, that a lot of planning goes into a successful crowdfunding campaign. I took time to set up the campaign itself – timeline, incentives, etc. – and began posting on social media before it began. Every day I thank donors on the site, as well as Twitter, Google+, LinkedIn and various pages...
My own crowdfunding campaign began this time last week on RocketHub, to support research expenses for my book Fag Hags, Divas and Moms: The Legacy of Straight Women in the AIDS Community. So I thought I’d share what I’ve learned so far:
Running a crowdfunding campaign is hard work. I knew, thanks to the detailed training materials from RocketHub and New York Foundation for the Arts, that a lot of planning goes into a successful crowdfunding campaign. I took time to set up the campaign itself – timeline, incentives, etc. – and began posting on social media before it began. Every day I thank donors on the site, as well as Twitter, Google+, LinkedIn and various pages...
World AIDS Day - And A Big Announcement
Dec 01, 2015 by Victoria Noe
Bus shelter poster, 1991
Dec. 1, 1988. I was in London, at a performance of The Secret of Sherlock Holmes with Jeremy Brett and Edward Hardwicke. At the curtain call, Brett made a speech about that being the first World AIDS Day. The ushers passed around collection buckets for donations to AIDS service organizations in London. What a concept, I thought: the whole world thinking about AIDS.
Over the years I’ve spent World AIDS Day conducting fundraising events, attending religious services, discussing issues. Tonight I’m leading a conversation on women and AIDS – how women were treated at the beginning of the epidemic and where we are now - at Women & Children First Bookstore in Chicago.
Today is also...
Dec. 1, 1988. I was in London, at a performance of The Secret of Sherlock Holmes with Jeremy Brett and Edward Hardwicke. At the curtain call, Brett made a speech about that being the first World AIDS Day. The ushers passed around collection buckets for donations to AIDS service organizations in London. What a concept, I thought: the whole world thinking about AIDS.
Over the years I’ve spent World AIDS Day conducting fundraising events, attending religious services, discussing issues. Tonight I’m leading a conversation on women and AIDS – how women were treated at the beginning of the epidemic and where we are now - at Women & Children First Bookstore in Chicago.
Today is also...
Why This Writer is Thankful
Nov 24, 2015 by Victoria Noe
Washington Square Park
It’s almost Thanksgiving, and for the first time, I’m spending it in New York. I decided to combine a research trip for my 2017 book Fag Hags, Divas and Moms: The Legacy of Straight Women in the AIDS Community with a chance to cross something off my life goals list (sounds better than bucket list, doesn’t it?). So on Thursday morning, I’ll be watching the Macy’s Thanksgiving Day Parade in person with my family. That opportunity has me thinking about what else I’m grateful for this Thanksgiving, related to my writing.
Brooke Russell Astor Reading Room, NYPL
I’m grateful for research librarians. I’ve always loved school and public librarians, but research librarians...
It’s almost Thanksgiving, and for the first time, I’m spending it in New York. I decided to combine a research trip for my 2017 book Fag Hags, Divas and Moms: The Legacy of Straight Women in the AIDS Community with a chance to cross something off my life goals list (sounds better than bucket list, doesn’t it?). So on Thursday morning, I’ll be watching the Macy’s Thanksgiving Day Parade in person with my family. That opportunity has me thinking about what else I’m grateful for this Thanksgiving, related to my writing.
Brooke Russell Astor Reading Room, NYPL
I’m grateful for research librarians. I’ve always loved school and public librarians, but research librarians...
That's What Friends Are For
Nov 17, 2015 by Victoria Noe
My brain is in a fog.
I’ve spent most of the last week trying to process news that I could’ve never anticipated:
I attended a luncheon where Caitlin Jenner was the speaker. She told why she decided not to commit suicide, when in fact, that would’ve been easier than coming out as transgender. She also spoke of the extremes that the paparazzi will go to, extremes she was able to occasionally thwart by wearing the same clothes several days in a row (they can’t sell photos to the tabloids if she looks the same as the day before). The horrific attacks in Paris. My daughter studied there for four months earlier this year, arriving just 10 days after the Charlie Hebdo attacks....
I’ve spent most of the last week trying to process news that I could’ve never anticipated:
I attended a luncheon where Caitlin Jenner was the speaker. She told why she decided not to commit suicide, when in fact, that would’ve been easier than coming out as transgender. She also spoke of the extremes that the paparazzi will go to, extremes she was able to occasionally thwart by wearing the same clothes several days in a row (they can’t sell photos to the tabloids if she looks the same as the day before). The horrific attacks in Paris. My daughter studied there for four months earlier this year, arriving just 10 days after the Charlie Hebdo attacks....
Friends Helping Friends
Oct 06, 2015 by Victoria Noe
As promised last week, I have another new announcement related to my new book project, Fag Hags, Divas and Moms: The Legacy of Straight Women in the AIDS Community.
Last week I unveiled a new Facebook page dedicated to that book. Yeah, I know: the book itself won’t be out until 2017. I figure it will be about a year before I finish research and begin to write. So why open up a new page now?
Well, as I’ve found here in this blog and other social media platforms, people are interested in the process of writing a book. Sometimes they’re readers who are curious about what goes into writing a book. Sometimes they’re writers who are curious about how other writers...
Last week I unveiled a new Facebook page dedicated to that book. Yeah, I know: the book itself won’t be out until 2017. I figure it will be about a year before I finish research and begin to write. So why open up a new page now?
Well, as I’ve found here in this blog and other social media platforms, people are interested in the process of writing a book. Sometimes they’re readers who are curious about what goes into writing a book. Sometimes they’re writers who are curious about how other writers...
Sometimes Your Calling Chooses You
Sep 15, 2015 by Victoria Noe
Last week I spent four days in Washington at the US Conference on AIDS. I’ve attended single-day conferences and meetings in the AIDS community over the years. But the last time I attended a multi-day conference was also in Washington, DC. It was an advocacy conference where we were lobbying for the authorization of the first Ryan White Care Act, now 25 years old (and in danger of being defunded, but that’s another story).
The theme of the event was “The Numbers Don’t Lie: It’s Time to End Disparities”. We heard a lot about how the South represents 1/3 of the population of the US, but 50% of those living with HIV or AIDS. We witnessed a powerful #TransLivesMatter demonstration during...
News about Friend Grief and AIDS
Mar 29, 2015 by Victoria Noe
It’s that time of year again! I’m pleased to announce the 2015 update of Friend Grief and AIDS: Thirty Years of Burying Our Friends.Each year about this time I update the resources and statistics in my book. That's one of the advantages of publishing today - nothing ever has to be out-of-date.You can find the updated ebook on Kindle, Nookand Kobo. The updated paperback will be available in about a week.If you have a previous version, just go to the AIDS UPDATE page here for new information on the epidemic.And as always, 25% of the retail price is donated to one of my favorite organizations in the fight against the epidemic: Broadway Cares/Equity Fights AIDS.
National Women and Girls' HIV/AIDS Awareness Day
Mar 10, 2015 by Victoria Noe
I was on staff at Chicago House when we opened the city’s first hospice for people with AIDS in January, 1990. At that time, there was only one funeral home that would accept the bodies. Nursing homes and stand-alone hospices refused anyone dying of AIDS. Sympathy was extended only for those who contracted the virus in a way that defined them as “innocent victims”: blood transfusions or birth. It was a beautiful old house near the lake shore, donated to our organization. The doctor who lived next door was opposed to it, but once he understood that people would arrive in an ambulance and leave in a hearse (unlike crowds lined up for the overnight shelter he imagined it to...
World AIDS Day 2014
Dec 01, 2014 by Victoria Noe
Today, December 1, is the 27th annual observance of World AIDS Day.Since that first year, when I dropped a few pounds in the collection can at the curtain call of a play in London, I’ve marked the anniversary.The second year I coordinated a fundraising event. Some years I went to a special Mass or memorial service. Other years I simply made note of it and went about my business.This year I’ll be part of a reading and panel discussion at Women & Children First bookstore in Chicago about the generation gap in the AIDS community. This reflection on Huffington Post last week will give you an idea of what that means in terms of fighting the epidemic.The theme for World...
Avoiding Grief at Work
Sep 26, 2014 by Victoria Noe
He looked great in a tux, tooI’ve been working hard lately on the next book in my series, Friend Grief in the Workplace: More Than an Empty Cubicle. But I struggled to find some validation about the importance of friendships at work.There’s plenty of anecdotal evidence: stories you’ll read in the book. What I wanted was something more objective. Maybe I needed to conduct my own survey, a daunting prospect I was not prepared to seriously consider. So I ignored the issue for a couple days. As luck would have it, just such a survey presented itself yesterday morning.You’ll learn more about the survey results in the book, but one of the obvious truths in it was the evidence that we...
Veterans in the War...Against AIDS
Sep 18, 2014 by Victoria Noe
Last night I attended an emotional event at Gay Men’s Health Crisis, in commemoration of National HIV and Aging Day (September 18). “We Aren’t Dead Yet! What Do We Do Now?” was billed as a community discussion, with an impressive panel of experts: Dr. Judith Rabkin, Columbia University Dept. of Psychiatry and Dr. Perry Halkitis, professor at NYU and author of The AIDS Generation: Stories of Survival and Resilience spoke along with two long-time HIV+ survivors, Jim Albaugh and Kevin Oree, and my friend Jim Eigo, long-time HIV- survivor and fellow ACT UP NY activist.The event was held in order to get feedback on the kinds of support and services needed by this often-forgotten, often-stigmatized group of people in my...
"Body Counts" by Sean Strub
Mar 13, 2014 by Victoria Noe
I’m not a fan of memoirs. I find a lot of them to be self-serving justifications for past behavior, spinning a fictional tale that presents the narrator as either a victim or hero. And while AIDS is an issue I’ve been involved with since the 80s, Sean Strub’s Body Counts was not a book I was excited about reading. Strub changed my mind on page 2, when he mentioned that a mutual friend, Jamie Leo, dressed as a priest at ACT UP’s controversial 1989 St. Patricks’ Cathedral demonstration. My mind flashed back to a Halloween party Jamie and I had attended in the mid-70s, and I now found myself connected to Strub’s story in a way I hadn’t anticipated.Body Counts...
Update on Friend Grief and AIDS
Jan 14, 2014 by Victoria Noe
One of the benefits of self-publishing is the ability to revise your books at your discretion.The second book in my series, Friend Grief and AIDS: Thirty Years of Burying Our Friends, has been well-received. It recently earned a 5-star review on Readers Favorites and continues to generate impassioned – and positive – reviews on other sites.When I wrote it a year ago, the statistics and resources in the back of the book were current. Time for an update.Around March 1, I will re-release Friend Grief and AIDS with:Updated statistics on HIV and AIDS around the worldAdditional books and films for those who are interestedMore links to organizations devoted to education, prevention, treatment and advocacyIf you have already purchased a copy,...
This Year – and Next - in Friend Grief
Dec 27, 2013 by Victoria Noe
Those of you who have been following my blog for a while know that this has been quite a year. I think we all have the tendency to look back in late December, and cringe at the thought of all we’d planned to do but didn’t. I started to do that not long ago, but had to stop myself. I was looking at only one part of my goals for this year, and in that category I definitely came up short: I self-published three books instead of six. Yeah, I know, I was a bit too optimistic. But what surprised me more than anything was what I accomplished that was not on my list. And I’ll tell you right now,...
World AIDS Day 2013
Dec 01, 2013 by Victoria Noe
In his November 4 review of Time Line Theatre’s revival of The Normal Heart, the Chicago Tribune’s Chris Jones attempts to put the play in historical context: “AIDS is no longer a death sentence.” If only.While it is true that those newly diagnosed are not given a prognosis of, say, thirty days (like Ron Woodroof in Dallas Buyers Club), in the fourth decade of the epidemic, there is still no cure and no vaccine. According to the Joint United Nations Programme on HIV/AIDS (UNAIDS), new infections are on the rise in Eastern Europe and Central Asia: 13% since 2006. In the past 12 years, new HIV infections have doubled in North African and the Middle East. Worldwide, 1.6 million people...
How to Help A Friend Who’s Dying
Nov 05, 2013 by Victoria Noe
Since I saw Dallas Buyers Club (my review here) I’ve been doing a lot of thinking. Although the main character, Ron Woodroof, is initially focused only on his own survival, eventually the people he helps – especially Rayon – become friends. He is literally helping them stay alive. And that got me thinking: what would I do?Sometimes what we are called upon to do, what we are able to do, seems insignificant: running errands, chauffeuring to doctor’s appointments, cooking meals. All serve a dual purpose: taking the burden of the mundane off the shoulders of someone who needs to focus all their attention and energy on fighting their disease, and also to provide a tangible example of friendship.Not everyone’s good...
"Dallas Buyers Club"
Oct 29, 2013 by Victoria Noe
Matthew McConaughey (Focus Features)“You’ve got 30 days.”To live.We’ve just met Ron Woodroof, an electrician and rodeo cowboy, who seems to spend an equal amount of time getting drunk and having sex. Suddenly ill, he finds himself in the hospital, being told what was unthinkable for a straight man in 1985: he was HIV positive. “Get your affairs in order,” the doctor tells him. He doesn’t. Instead, his crash course in research about AIDS makes him the most unlikely – and initially, unlikeable - cinematic hero you will even encounter.Based on a true story, Dallas Buyers Club recounts with great authenticity a moment in history. Rock Hudson had just died. Tens of thousands of non-celebrities had died of AIDS. ACT UP...
What Could Be Worse Than A Friend’s Death?
Jul 25, 2013 by Victoria Noe
Surviving. Of course we survive. We wouldn’t be here to grieve our friends if we weren’t alive. Sometimes the depth of that grief takes us by surprise, which is one of the reasons why I started this blog and my books.But when I started writing about grieving the death of a friend, I didn’t expect to find that survivor guilt plays such a huge role in the lives of many people.While researching the second book in my series, Friend Grief and AIDS: Thirty Years of Burying Our Friends, I learned that one of the biggest issues for long-time HIV+ men is survivor guilt. Like me, they lost a lot of friends: dozens, even hundreds. But because of luck or...
AIDS: Mad as Hell. Again.
Jul 05, 2013 by Victoria Noe
(This is a little long, so bear with me) I planned to walk in Chicago’s Gay Pride parade last Sunday. But by the time I got near the staging area to join my group, the pain in my hip was growing worse by the minute. I knew I couldn’t walk, and even riding in the truck would be more than uncomfortable; forget about standing for a couple hours. I bailed just before it started. But before I did, I got mad.It wasn’t my first Pride parade. I rode on the Chicago House float in 1990, when I was on staff there and the AIDS epidemic was going full force. I’d attended the parade, lived on the route, got caught...
Author photo by Alina Oswald
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