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AIDS
"No one knows who you are."
I was in New York for the Writer's Digest Conference in 2017 and decided to go to Pitch Slam. For those of you unfamiliar with the concept, it’s like speed dating for writers. Before the conference, you’re provided with a list of agents and editors who will be there, looking for authors to add to their client list. You choose a few, based on how closely their interests align with your book.
When the day comes, you sit across the table from an agent or editor and tell them about your book in a very limited amount of time: three minutes. They tell you if they want a full book proposal or if they’re not interested. A bell rings, and you move to the next agent/editor. It’s stressful and at times completely demoralizing. But there have been many success stories.
I wasn’t looking for an editor or an agent that day. I just wanted to get feedback on my book I was working on, about straight women in the AIDS community.
Long-Term Survivor
I’m in New Orleans for the US Conference on HIV/AIDS, so I thought I’d share this essay that won the 2015 Christopher Hewitt Award for Nonfiction, appearing in the October issue of the late, great A&U Magazine. I was surprised to see that my feelings remain the same.
It’s only the past few years that the designation has become widely used. Hell, no one expected it would ever be possible. There was a time when my only prayer was to get through a week without reading the obituary of someone I knew or admired from afar.
Since many who have reached that milestone are also baby boomers like me, I’ve taken a special interest in their challenges. During a visit to New York, I attended a listening session at Gay Men’s Health Crisis and was profoundly moved by stories of isolation and loneliness, especially from straight men and women who felt a unique stigma. But I was an observer, not a participant.
A few months ago, when Jeff Berry at Test Positive Aware Network (TPAN) announced The Reunion Project in Chicago, I told him I’d like to attend, though I wasn’t a long-term survivor.
A Second Edition? Why?
As I was finishing my latest book, What Our Friends Left Behind: Grief and Laughter in a Pandemic last summer, I began to consider the ever-present question: ‘what’s next?’ I had no lack of ideas: some that had been percolating for years, others that were new possibilities. But one kept nagging at me, in a good way.
I published F*g Hags, Divas and Moms: The Legacy of Straight Women in the AIDS Community in March, 2019. After writing for years about friend grief, it might have seemed a change of pace. I’d already written one book about the AIDS epidemic, but I knew that someday I’d do a deeper dive. A panel discussion in April, 2014 about the women of ACT UP/NY gave me that initial push: to tell stories of cisgender straight women around the world who changed the course of the epidemic. With the exception of a handful of memoirs, they were missing from the narrative of HIV/AIDS. I decided to write what one person described as ‘Hidden Figures for the AIDS epidemic’. And so I did.The Joy of Writing, Rediscovered
You know the social media posts, the ones about grabbing all the joy you can find? About discovering joy in ordinary moments, not just big ones? I think they’re annoying. Full disclosure: it’s not easy for me to access joy. I know it when I see/feel it, but it seems to be avoiding me more than I’d like.
The last year or so, I’ve concentrated on looking for joy in other people and their accomplishments. I jump on posts announcing a new grandchild or a work accomplishment, on reels of photos of once-in-a-lifetime vacations. I can feel the joy in the posts and I celebrate it, even though it’s someone else’s. And for a while, that was enough.
The Book That Keeps on Giving
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While I work on my next book (Friend Grief and COVID: Pandemic Stories) I continue to spend a significant amount of time on my last book. Fag Hags, Divas and Moms: The Legacy of Straight Women in the AIDS Community will be three years old in March. I expected the initial excitement about it to fade by the end of the first year; that’s pretty normal. But it didn’t. If anything, it has given me the opportunity to expand my business in unexpected ways.
That first year was full of book signings, feature articles, and respectable sales. The success of the book turned me into an expert on the topic. The second year, though, is when it really took off.
This is Not A Year-End Review of 2021
I’m kind of tired of those year-end review articles and blog posts.
I’ve always considered Labor Day the start of a new year. That’s when school starts, and in the performing arts, when the new season begins. Other than changing calendars and getting ready to do taxes, I guess living on a school year timeline still rules my life. That’s why I decided I wanted to take this opportunity to look forward to 2022, not back to 2021.
One skill I’ve improved the past two years is the willingness to pivot. I’m not perfect at this: there are still times I rage against changing plans. But flexibility is more important than ever, and that’s why I’ve made plans for 2022 (and beyond) that are fairly easy to adapt. What’s in the works, you ask?
Book Review - Never Silent by Peter Staley
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It’s hard to review a book written by a friend.
You want to be publicly supportive so that others will buy their book. You know the time and effort and challenges that led to words on the pages. You want to like it. Sometimes, that can be a challenge in itself. I’ve read books by friends that were badly written, badly edited. Should I keep my mouth shut and leave the criticism to strangers? Luckily, I did not have to consider that with Peter Staley’s long-anticipated memoir, Never Silent.Before You Write Your Story, Make Sure You're Not Alone
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Since at least 2013, when my first books were published, people have asked me how to go about writing their own book. They’ve asked about publishing, they’ve asked about writing groups, they’ve asked about how to get the courage to write. Many of them want to write a memoir based on their experiences in the early days of the AIDS epidemic.
For a long time, I would offer unabashed encouragement and suggestions for how to proceed. I let them know I would answer any questions they had along the way. Some of them took me up on that offer; not all of them followed my advice. That’s okay. The important thing was that they were telling their stories.
When the COVID pandemic began, I joined online writing groups of long-term survivors in the HIV/AIDS community. Some were already published authors; many had never been published. A few of them were considering going that route, but others were mainly interested in recording their feelings and experiences during what quickly became their second pandemic.
Book Review: All The Young Men
What began as a simple question to a dying stranger - “What do you need, honey?” - changed the life of Ruth Coker Burks and the hundreds of people in Arkansas she helped during the darkest days of the AIDS epidemic. Little did she imagine that in a short amount of time, she would not only be caring for the dying, but burying their ashes in chipped cookie jars in her family plots in Files Cemetery. And more. Much more.
Making Plans for 2021: A Leap of Faith
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The bottom line was that I wanted to diversify my writing and writing business. I didn't want to be overly dependent on any one activity, whether it was public events or book sales. And that meant I had to learn new skills and upgrade the ones I already had.
The Pandemic Had a Soundtrack
The audio version of my book - Fag Hags, Divas and Moms: The Legacy of Straight Women in the AIDS Community - came out in October. I've heard nothing but praise for the narrator, Donna Allen, which makes me very happy. While I was working on the marketing plan, music kept popping into my head. That's not unusual. A lot of people listen to music while they work. These were more like earworms: songs that played endlessly in my head whether I liked it or not.
The music sparked an idea, which apparently former President Barack Obama has stolen for his own book (I'm kidding, really I am). I decided to create a playlist of songs that evoke the first 15 years of the AIDS epidemic, from 1981-1996, the years without effective treatment or hope. Unfortunately, most of the songs I remembered were just, well, depressing. Creating that kind of list no longer seemed like a good idea.
So I turned to the women who inspire me, women whose stories I shared in my book. What songs instantly remind them of that time: of people, places or events? It didn't take long for a response.
How I Found the Perfect Audiobook Narrator
The story of Fag Hags, Divas and Moms: The Legacy of Straight Women in the AIDS Community has been the story of unexpected and meaningful connections. So I guess I shouldn’t have been surprised when my narrator became one of those. When I signed on with Findaway Voices to produce my audiobook, I had to submit a list of requirements for the narrator. That required me to think about tone, inflections, and mood.
Reflection on COVID-19 - More from Trudy James
As I said last week, Trudy James is one of the most remarkable women in my book, Fag Hags, Divas and Moms: The Legacy of Straight Women in the AIDS Community. Her advocacy and activism - in HIV/AIDS and the death and dying communities - was recently honored by AARP Washington. She had so much to say about facing a deadly pandemic, that I decided to share more of her thoughts. I hope you find them comforting, too.
In addition to the “Speaking of Dying” film and workshops, I often give presentations, workshops, and consultations on the subjects of grief and loss. For many people this is new information. In these “Excited States of America” we have never...
Reflection on COVID-19 - Guest Post by Trudy James
If you've read my book Fag Hags, Divas and Moms: The Legacy of Straight Women in the AIDS Community, you were probably surprised by the story of Trudy James, a hospital chaplain in Arkansas in the late 1980s. I know her story surprised me, too! She is now a leader in the field of death and dying, as well as grief and loss awareness. In the first of two guest blogs, Trudy shares an email she sent out on March 30, not long after the lock downs began:
I was enjoying a long-anticipated vacation in Italy with my friend, Jane. We were visiting my son and daughter-in-law who were planning to live in Umbria (mid-Italy, not...
A Reflection on COVID-19 - Guest Post by Krishna Stone
Reflections on COVID-19 - Guest Post by Nancy Duncan
As a woman...
Reflections on COVID-19 - Guest Post by Kathleen Pooler
As I write this post, I am sitting in a wheelchair in the rehab facility where I have been for two months to heal from a femur fracture sustained after a fall. I have plenty of idle time to immerse myself in the constant coverage of our current pandemic and reflect on what it all means. I’m a retired nurse...
Passing on the Lessons of the AIDS Epidemic
When I was writing Fag Hags, Divas and Moms: The Legacy of Straight Women in the AIDS Community, I sometimes heard the voices of the women whose stories I was sharing. It was more of a feeling that they were in the room, reading over my shoulder. I’d had something very specific in mind when I began, but that idea changed, in large part because these women guided me. They made it a much better book.
Many of the women are no longer alive, so they don’t have to face another worldwide pandemic. But I realized that they and the ones still with us have a lot to say.
Dr. Molly Cooke, on facing...
My Second Pandemic - Part 2
I was grateful that the response to that post was immediate and positive. I heard from other members of the HIV/AIDS community who were in a similar place. Our conversations, mostly on Facebook, were emotional and oddly uplifting: we’d discovered a new connection. I figured I said my piece and I was done.
In the past couple of weeks, articles have popped up on various websites. Most have been written by long-term survivors in the HIV/AIDS...
My Second Pandemic
It might have been the word ‘pandemic’.
It might have been ‘only certain people will get this virus, not me’.
It might have been stories of meal deliveries left on porches, or recommendations that counters and doorknobs be wiped down with disinfectants.
It might have been a Republican president indifferent at best to the suffering of those whose lives he did not consider important.
It might have been the blame, the pointing fingers, the demonizing.
It might have been the insistence of many people to carry on their lives as usual, no matter...
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